Verfügbarkeit: The EuroQol Group after 25 years

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Bibliographische Detailangaben
Titel:	The EuroQol Group after 25 years
Von:	Richard Brooks
Person:	Brooks, Richard Verfasser aut
Hauptverfasser:	Brooks, Richard (VerfasserIn)
Format:	Buch
Sprache:	Englisch
Veröffentlicht:	Dordrecht [u.a.] Springer 2013
Notation:	XB 3400
Schlagwörter:	EuroQol Group Geschichte 1978-1012 GESUNDHEIT UND HYGIENE VON PERSONEN, GESUNDHEITSSTATUS GESCHICHTE DER MEDIZIN SCHRIFTLICHES INTERVIEW (SOZIALWISSENSCHAFTEN) HEALTH AND HYGIENE OF PERSONS, HEALTH STATUS SANTÉ ET HYGIÈNE DE PERSONNES, ÉTAT DE SANTÉ HISTOIRE DE LA MÉDECINE HISTORY OF MEDICINE INTERVIEW ÉCRIT (SCIENCES SOCIALES) WRITTEN INTERVIEW + QUESTIONNAIRE SCHEDULE (SOCIAL SCIENCES) Health status indicators / Research / Europe / History Geschichte Europa
Medienzugang:	http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=025334999&sequence=000003&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=025334999&sequence=000004&line_number=0002&func_code=DB_RECORDS&service_type=MEDIA
Beschreibung:	Includes bibliographical references and index
Umfang:	XVI, 288 S. graph. Darst.
ISBN:	9789400751576 9400751575 9789400751583 9400751583

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Datensatz im Suchindex

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adam_text	Contents 1 Introduction ........................................... 1 !. і Setting the Scene .................................... 1 1.2 Pre-history ......................................... 2 1 .3 Outline of the Book .................................. 3 1 .4 The Narrative ....................................... 4 1.5 Sources and Referencing .........................,..... 5 1.6 The EuroQol Family ................................ 6 2 The Early Years ........................................ 13 2. 1 Introduction ........................................ 13 2.2 First Meeting May 1987............................... 14 2.3 Second Meeting October 1987.......................... 16 2.4 Third Meeting January 1988............................ 16 2.5 Fourth Meeting July 1988.............................. 18 2.6 Fifth Meeting July 1989............................... 22 Desired Properties of EuroQol Measure .................... 22 Scaling Method, Validity, and Response Rates ............... 23 Data Reporting ...................................... 23 Presentation of Descriptors ............................. 23 Socio-demographic Data ............................... 24 Treatment of Being Dead* ............................. 24 Data Exchange ...................................... 24 Development Programme, Publications, and Membership ....... 24 Commentary ....................................... 25 2.7 Sixth Meeting January 1990............................ 25 Objectives ......................................... 25 Treatment of Being Dead ............................. 26 Multi-stage Versus Composite Single Stage Valuations ........ 26 viii Contents Descriptors ........................................ 26 Selection of the Core States, Presentation of the Task, and Testing the Reliability of the Descriptors ............... 27 Publications ....................................... 27 Organisational and Procedural Matters .................... 27 Future Meetings .................................... 27 2.8 Seventh Meeting September 1990....................... 28 Objectives ........................................ 28 Revised Descriptors ................................. 28 Presentation ....................................... 29 Data Handling Arrangements .......................... 30 Experiments - Past, Present and Future ................... 30 Publications ....................................... 30 Membership ....................................... 31 Organisational Matters ............................... 31 Finance .......................................... 32 2.9 EuroQolus ........................................ 32 2.10 Concluding Remarks ................................ 35 3 Descriptive System ...................................... 37 3.1 The Development of the Descriptive System ............... 37 Objectives ........................................ 38 Requirements ...................................... 38 Selection of Dimensions .............................. 38 Levels ........................................... 39 Language ......................................... 39 Descriptive System .................................. 39 3.2 The Descriptive System 1991-2001...................... 42 Lund Plenary Meeting 1991........................... 42 Helsinki Plenary Meeting 1992......................... 42 Liaison Officers Meeting April 1993..................... 43 Rotterdam Plenary Meeting 1993....................... 43 Brunei Plenary Meeting 1994.......................... 43 Barcelona Plenary Meeting 1995........................ 44 Oslo Plenary Meeting 19%............................ 44 Rotterdam Plenary Meeting 1997....................... 45 Hannover Plenary Meeting 1998........................ 46 Sitges Plenary Meeting 1999........................... 46 3.3 2001 to Date ...................................... 48 Copenhagen Plenary Meeting September 2001.............. 48 York Plenary Meeting 2002........................... 48 Eighth Executive Committee Meeting May 2004............ 49 Chicago Plenary Meeting 2004......................... 49 Contents Tenta Executive Committee Meeting Chicago September 2004..................................... 49 Eleventh Executive Committee Meeting February 2005........ 50 Oslo Plenary Meeting 2005............................. 51 Twelfth Executive Committee Meeting Oslo September 2005 .... 52 First EQ-5D Increased Level Task Force Meeting November 2005..................................... 53 Fourteenth Executive Committee Meeting February 2006....... 54 Second Increased Level Task Force Meeting March 2006....... 54 Third Labelling Sub-task Force Meeting May 2006........... 55 Sixteenth Executive Committee Meeting June 2006........... 55 Fourth Labelling Sub-task Force Meeting September 2006...... 56 Subsequent Meetings of the Task Force .................... 56 Barcelona Plenary Meeting September 2006................ 56 Netherlands Plenary Meeting September 2007............... 56 Twenty-Second Executive Committee Meeting December 2007 and 24th Executive Committee Meeting April 2008......................................... 57 Baveno Plenary Meeting September 2008.................. 57 Labelling Sub-task Force Consensus Report: The Development of a Five-Level Version ofEQ-SD ........................ 58 Twenty-Seventh Executive Committee Meeting November 2008..................................... 61 Final Report of the SL/Labelling Task Force to the Executive Committee ......................................... 62 Developments from 2009.............................. 63 3.4 Concluding Remarks ................................. 64 Translation, Language and Semantics Issues .................. 65 4.1 Introduction ........................................ 65 4.2 Translation Issues 1992-1999........................... 65 Brunei Plenary Meeting 1994........................... 66 Translation Guidelines ................................ 67 Barcelona Plenary Meeting 1995......................... 67 Oslo Plenary Meeting 1996............................. 68 Rotterdam Plenary Meeting 1997........................ 70 Hannover Plenary Meeting 1998......................... 71 Sitges Plenary Meeting 1999............................ 71 4.3 EQ-Net Project ...................................... 71 4.4 Translation Issues After the EQ-Net Project ................. 74 Barcelona Plenary Meeting 2006......................... 75 Twenty-Fourth Executive Committee Meeting Kijkduin - The Hague, The Netherlands September 2007............... 75 4.5 Concluding Commentary .............................. 78 Contents Valuation ............................................. 79 5.1 The Early Years 1987-1990............................ 79 5.2 1991-1998......................................... 81 Lund Plenary Meeting 1991............................ 81 Helsinki Plenary Meeting 1992.......................... 82 Rotterdam Plenary Meeting 1993........................ 83 Brunei Plenary Meeting 1994........................... 84 State of Play Paper 1996............................... 85 Barcelona Plenary Meeting 1995......................... 87 Oslo Plenary Meeting 1996............................. 88 Rotterdam Plenary Meeting 1997........................ 89 Hannover Plenary Meeting 1998......................... 89 Sitges Plenary Meeting 1999............................ 90 Pamplona Plenary Meeting 2000......................... 90 5.3 The Biomed EQ-Net Project 1998-2001................... 90 Construction of the EQ-Net VAS and TTO Databases ......... 91 Comparison of EQ-5D VAS Valuations .................... 92 A European EQ-5D VAS Valuation Set .................... 93 A Comparison of EQ-5D TTO Values ..................... 95 5.4 2001-2007......................................... 96 Valuation-Related Papers at Plenary Meetings 2001-2007...... 96 Valuation Issues Raised at Association Meetings, the Executive Committee, the Board, and the Valuation Task Force 2001-2007................................ 101 First EQ-5D Valuation Task Force (VTF) Meeting June 2006____ 103 Twenty-First Board Meeting October 2006................. 105 Second VTF Meeting November 2006..................... 105 Valuation Task Force DCE Meeting March 2007............. 106 Fourth VTF Meeting March 2007........................ 107 Fifth VTF Meeting May 2007........................... 108 Twenty-Ninth Executive Committee Meeting July 2007........ 109 Kijkduin — The Hague, The Netherlands Plenary Meeting September 2007..................................... 109 Concluding Commentary on the Period 2001-2007........... 109 5.5 Developments After 2008.............................. 110 Baveno Italy Plenary Meeting 2008....................... 110 Sixth VTF Meeting Baveno September 2008................ 110 3L Valuation Protocol ................................ 112 Seventh VTF Meeting February 2009..................... 114 Eighth VTF Meeting May 2009......................... 114 Twenty-Ninth Executive Committee Meeting May 2009....... 115 Thirty-First Executive Committee Meeting Paris September 2009..................................... 115 Contents xi Ninth VTF Meeting Paris September 2009.................. 116 Paris Plenary Meeting 2009............................ 116 Tenth VTF Meeting October 2009........................ 117 Thirtieth Board Meeting November 2009................... 117 Eleventh VTF Meeting February 2010..................... 118 Twelfth VTF Meeting 26 April 2010...................... 119 Thirty-Sixth Executive Committee Meeting June 2010......... 119 Thirteenth VTF Meeting May 2010....................... 120 Athens Plenary Meeting 2010........................... 121 Fourteenth VTF Meeting Athens September 2010............ 121 Thirty-Seventh Executive Committee Meeting September 2010 Athens............................... 122 Thirty-Eighth Executive Committee Meeting October 2010..... 122 Thirty-Ninth Executive Committee Meeting November 2010.... 123 Fifteenth VTF Meeting December 2010.................... 123 Sixteenth VTF Meeting March 2011...................... 123 Fortieth Executive Committee Meeting March 2011........... 124 4C Pilot Study Analysis Team Meeting May 2011............ 124 VTF Meeting June 2011............................... 125 Forty-Second Executive Committee Meeting June 2011........ 125 Exploratory Analysis to Provide a Common Basis for the EuroQol Group 5L Multi-country Study September 2011....... 126 Oxford Plenary Meeting September 2011.................. 127 Forty-Fourth Executive Committee Meeting December 2011. ... 128 5.6 Concluding Remarks ................................. 129 6 Applications ........................................... 131 7 EuroQol Organisation and Administration .................... 145 7.1 The Formative Years 1987-1991......................... 145 7.2 Lund (1991) and Helsinki (1992) Plenary Meetings ........... 146 7.3 Overall Organisation 1993-2003......................... 147 Rotterdam Plenary Meeting (1993)....................... 148 Brunei Plenary Meeting (1994).......................... 148 Barcelona Plenary Meeting (1995)....................... 149 7.3.1 Biomed EQ-Net Project .......................... 151 7.4 The Executive Committee, the Board, and Related Constitutional Issues .................................. 154 7.5 Copyright and Related Legal Issues ....................... 161 7.6 Finance ........................................... 164 7.7 Plenary Meeting Arrangements .......................... 171 Concluding Remarks on Plenary Meeting Arrangements ........ 177 7.8 Membership ........................................ 177 xii Contents Membership Review Report 2010....................... 181 7.9 Other Issues ....................................... 185 7.9.1 User Interaction ............................... 186 7.9.2 Publicity.................................... 190 7.9.3 Publications ................................. 192 7.9.4 Data Archiving ............................... 193 7.10 Concluding Remarks ................................ 195 8 Research, Product Development, and the Work of the Task Forces ...................................... 197 8.1 Research and Product Development 2001-2011............. 198 Memorandum on Product Development August 2004......... 199 Twelfth Executive Committee Meeting Oslo September 2005... 201 8.2 Youth Task Force ................................... 204 Inaugural Meeting of the Child-Friendly Task Force January 2006...................................... 206 The Youth Instrument and Its Administration ............... 207 Proxy Versions ..................................... 210 Age Ranges ....................................... 212 Validation ........................................ 213 VAS ............................................ 214 Dimensions ....................................... 214 Expansion to 5L .................................... 216 Valuations ........................................ 216 Papers and Publications .............................. 220 8.3 Digital Task Force .................................. 222 Inaugural Meeting of the Digital Squad May 2008........... 224 Second Meeting Baveno September 2008................. 227 Third Digital Task Force Meeting January 2009............. 227 Developments in 2009............................... 228 Digital Task Force Report February 2010................. 229 DTF Meeting March 2011............................. 230 Digital Task Force Report March 2011................... 230 The Latest Position and Concluding Remarks on Electronic Versions ............................... 231 8.4 Condition Specific Task Force .......................... 232 Condition-Specific Bolt-Ons/Dimension Extensions to the Standard EQ-5D ____........................... 233 EQ-5D 5-Level Field Testing and Development of a Crosswalk ..................................... 235 Concluding Remarks on the CSPTF ...................... 236 8.5 Population Health Task Force .......................... 237 Contents xiii First PHTF Meeting November 2007...................... 237 Second PHTF Meeting Baveno September 2008............. 239 Third PHTF Meeting Paris September 2009................. 240 Fourth PHTF Meeting Athens September 2010.............. 242 PHTF Report Plenary Meeting Oxford September 2011........ 243 8.6 Concluding Remarks ................................. 244 9 The Future ............................................ 245 Strategy ............................................... 246 The External Environment ................................. 247 Appendices ............................................... 249 References ............................................... 271 Index ................................................... 283 The Eureki Group after 25 years Ibe EuroQol Groap first met in Rotterdam in May 1987 determined to· develop a stand¬ ardised non-disease-spedfic instrument for valuing health-related quality of life. The book traces the activities of the Group over the next 25 years. The instrament constructed, eventually named the EQ-5D, was translated into many languages and used in a wide range of countries and settings. The book describes how the instruments descriptive system was determined, how translation and language issues were handled, and how valuations were provided. Recent developments, in particular a 5-Ieveî version (EQ-5B- sL), and a youth version (EQ-5D-Y} are covered. The history of the institutional and administrative framework within which the Groap operated is also treated.
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spellingShingle	Brooks, Richard The EuroQol Group after 25 years EuroQol Group (DE-588)10192546-3 gnd GESUNDHEIT UND HYGIENE VON PERSONEN, GESUNDHEITSSTATUS GESCHICHTE DER MEDIZIN SCHRIFTLICHES INTERVIEW (SOZIALWISSENSCHAFTEN) HEALTH AND HYGIENE OF PERSONS, HEALTH STATUS SANTÉ ET HYGIÈNE DE PERSONNES, ÉTAT DE SANTÉ HISTOIRE DE LA MÉDECINE HISTORY OF MEDICINE INTERVIEW ÉCRIT (SCIENCES SOCIALES) WRITTEN INTERVIEW + QUESTIONNAIRE SCHEDULE (SOCIAL SCIENCES) Health status indicators / Research / Europe / History Geschichte
subject_GND	(DE-588)10192546-3
title	The EuroQol Group after 25 years
title_auth	The EuroQol Group after 25 years
title_exact_search	The EuroQol Group after 25 years
title_full	The EuroQol Group after 25 years Richard Brooks
title_fullStr	The EuroQol Group after 25 years Richard Brooks
title_full_unstemmed	The EuroQol Group after 25 years Richard Brooks
title_short	The EuroQol Group after 25 years
title_sort	the euroqol group after 25 years
topic	EuroQol Group (DE-588)10192546-3 gnd GESUNDHEIT UND HYGIENE VON PERSONEN, GESUNDHEITSSTATUS GESCHICHTE DER MEDIZIN SCHRIFTLICHES INTERVIEW (SOZIALWISSENSCHAFTEN) HEALTH AND HYGIENE OF PERSONS, HEALTH STATUS SANTÉ ET HYGIÈNE DE PERSONNES, ÉTAT DE SANTÉ HISTOIRE DE LA MÉDECINE HISTORY OF MEDICINE INTERVIEW ÉCRIT (SCIENCES SOCIALES) WRITTEN INTERVIEW + QUESTIONNAIRE SCHEDULE (SOCIAL SCIENCES) Health status indicators / Research / Europe / History Geschichte
topic_facet	EuroQol Group GESUNDHEIT UND HYGIENE VON PERSONEN, GESUNDHEITSSTATUS GESCHICHTE DER MEDIZIN SCHRIFTLICHES INTERVIEW (SOZIALWISSENSCHAFTEN) HEALTH AND HYGIENE OF PERSONS, HEALTH STATUS SANTÉ ET HYGIÈNE DE PERSONNES, ÉTAT DE SANTÉ HISTOIRE DE LA MÉDECINE HISTORY OF MEDICINE INTERVIEW ÉCRIT (SCIENCES SOCIALES) WRITTEN INTERVIEW + QUESTIONNAIRE SCHEDULE (SOCIAL SCIENCES) Health status indicators / Research / Europe / History Geschichte Europa
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UB Lesesaal Medizin

Signatur notieren und vor Ort nutzen oder für zwei Wochen ausleihen

Bestandsangaben von UB Lesesaal Medizin
Signatur:	91 XB 3400 B873
Exemplar 1	entleihbar Vorhanden